Research at Life With Cancer
The Research Committee at Life with Cancer works to evaluate the needs of patients and families at all points along the cancer experience continuum, to monitor the effectiveness of ongoing programs, and to use data from these efforts to develop innovative interventions to improve the lives of cancer patients, survivors and their caregivers. Research activities often involve healthcare professionals including nurses and social workers, as well as survivors, their families and organizations that support cancer survivorship.
All research conducted at Life with Cancer is in compliance with policies and procedures of the Inova Health System Institutional Review Board (IRB) including adherence to the requirement stating all staff participating in research at Life with Cancer will have human participant protection certification.
To learn more about research at Life with Cancer, please contact:
Paul G. Clark, PhD, LCSW
- Reducing Psychological Distress in the Inpatient Oncology Treatment Setting Using Flex Care™: An Intervention Study. (2009)
- Providing Support to Secondary Cancer Survivors at Loved One’s Time of Death: Results of a Five-year Study. (2006)
- Screening for Psychological Distress in the Inpatient Oncology Setting. (2006)
- Assessing the Reliability and Validity of the Knowledge, Comfort, Attitude and Approach of Sexuality Scale (KCAAS) for Oncology Social Workers. Evaluating a scale and data collected to assess the reliability and validity of measuring oncology social workers needs as it relates to their knowledge, comfort, attitude and approach of sexuality in persons with cancer.
- A Randomized, Four-Arm Study Comparing Reiki, Yoga, Meditation, or Patient Education Group for Addressing Symptoms of Chemotherapy-Induced Peripheral Neuropathy (CIPN).
- The Impact of Reiki on Stress, Pain, Energy, Anxiety& Physical Condition
- (Awarded July 2009). Project 6C: Improving Adjuvant Oral Drug Adherence among Diverse Patients with Limited Health Literacy. Funding for $48,500 for two years from the Mason-Inova Life Sciences Research Collaboration Fund.
- (2009). A Randomized, Four-Arm Study Comparing Reiki, Yoga, Meditation or Patient Education Group for Addressing Symptoms of Chemotherapy-Induced Peripheral Neuropathy (Principal Investigator). Funding for one year at $17,300 from the George Mason University Center for Consciousness and Transformation.
- (2006). My Navigator: An Online Program for Young Adults with Cancer. Funding for one year at $10,000 from the Lance Armstrong Foundation.
- Abell, M., Davey, T., & Clark, P. (2009). Community case management intervention for
hard-to-place homeless families leaving emergency shelter. Families in Society (submitted).
- Bolte, S. (2003). Contemplation for the busy oncology social worker: A quick guide for being in
touch with the deeper meaning of your life. Association of Oncology Social Workers Newsletter, August.
- Bolte, S. (2005). Survivor guilt: The impact on group dynamics. Association of Oncology Social Work
- Bolte, S. (2005). The asexual myth. Journal of Psychosocial Oncology request to submit abstract and presentation of The Asexual Myth presented at the AOSW 2005 Conference as a manuscript.
- Bolte, S. (2006). Sexuality and spirituality. INOVA Health System Chaplain Partnership Newsletter, November.
- Bolte, S. (2007). Sexuality and cancer. Life with Cancer Patient and Partner Education Newsletter, Spring.
- Bolte, S. & Zebrack, B. (2008). Sexual issues in special populations: Adolescents and young adults. Seminars in Oncology Nursing. 24:2, 115-119.
- Cagle, J. & Bolte, S. (2009). Sexuality and life threatening illness: Implications for social work and palliative care. Health and Social Work, 34;3, 223-233.
- Cramer, E. P., & Clark, P. G. (2006). Evaluation of the cut out domestic violence program in Virginia. Family Violence and Sexual Assault Bulletin.
- Cohen, E. & Cawthorne, L. (2004) Development of Low Literacy, Multicultural Teaching Sheets In a Diverse Community Based Health System. Oncology Nursing Forum.
- Cohen, E & McBride, D (2009). Misuse of Social Networking May Have Ethical Implications for Nurses. A Closer Look, ONS Connect, July 2009, 17.
- Connor, C. (2008), Coping with late effects: the challenge of childhood cancer survivorship, Life with Cancer Patient Newsletter, Summer.
- Cortese-Jimenez, G. (June 2008). Complementary and alternative modalities enrich oncology nursing. Oncology Nursing Society Complementary & Integrative Therapies. 16(2).
- Gnesdiloff, S. (2004/05). What is Reiki? Reiki is wooonnderfuull! Association of Oncology Social Workers Newsletter, 20(2) Winter.
- Gnesdiloff, S., Boyle, D., Blodgett, L. et al. (2000). Caregiver quality of life after autologous bone marrow transplantation. Cancer Nursing. 23(3):193-203; quiz 204-5.
- Gnesdiloff, S., Boyle, D. & Cawthorne, L. (1999). Complementary and alternative therapies in cancer nursing practice: A primer. Innovations in Breast Cancer Nursing, 4(4):111-120.
- Cohen, E., McBride, D. (2009). Misuse of social networking may have ethical implications for nurses. Oncology Nursing Society Connect, July.
- McDaniel, J. G., & Clark, P. G. (2009). The new adult orphan: Issues and considerations for care providers. Journal of Gerontological Nursing (in press).
Manuscripts in Progress
- Clark, P. G (in progress). Reducing psychological distress in the inpatient oncology treatment setting using Flex Care™: An intervention study.
- Clark, P. G., Gnesdiloff, S., Brethwaite, D. S., (in progress). Providing support to secondary cancer survivors at loved one’s time of death: Results of a five-year study.
- Clark, P. G., Brethwaite, D. S., & Rochon, E. (in progress). Screening for psychological distress in the inpatient oncology setting.
2011 - 2013 Accomplishments
National & Regional Awards
Sage Bolte, PhD, MSW
Eric Cohen, RN, OCN
Sabine Gnesdiloff, LCSW, OSW-C
James Zabora, ScD, MSW
Constance Connor, LCSW
Representative List of Publications
(Life with Cancer staff names are in bold print)
Bevans, M, Wehrlen, L., Prachenko, O., Soeken, K., Zabora, J., Wallen, G. (2011). Distress Screening in Allogeneic Hematopoietic Stem Cell (HSCT) Caregivers and Patients. Psycho-Oncology. 20(6):615-22.
Clark, P.G., Brethwaite, D., & Gnesdiloff Hughes-Caley, S. (2011). Providing support at time of death from cancer: Results of a 5-year post bereavement group study. Journal of Social Work in End-of-Life & Palliative Care, 7:1-21. doi: 10.10801/15524256.2011.593156.
Clark, P.G., Rochon, E., Brethwaite, D., & Edmiston, K. (2011). Screening for psychological and physical distress in a cancer inpatient treatment setting: A pilot study. Psycho-Oncology, 20. doi: 10.1002/pon.1908.
Bolte, S., The needs of young adults. Handbook of Oncology Social Work, Oxford University Press, in press.
Bolte, S. & Anrig, C. Sexuality and Cancer. Handbook of Oncology Social Work, Oxford University Press, in press.
Clark, P. & Bolte, S., Integrating adult lifespan issues. Handbook of Oncology Social Work, Oxford University Press, in press.
Clark, P., Bolte, S., Buzaglo J., Golant, M., Daratsos, L., Loscalzo, M. (2012). From Distress Guidelines to Developing Models of Psychosocial Care: Current Best Practices. Journal of Psychosocial Oncology, 30:6, 694-714.
Clark, P. G., Cortese-Jimenez, G., & Cohen, E. (2012). Using reiki, yoga, meditation, or education groups in the management of chemotherapy-induced peripheral neuropathy: Results of a four-Arm pilot study. Journal of Evidence-Based Complementary& Alternative Medicine, 17(3), 161-171.
McCaw, Jean, MA, ATR-BC. (2013). Touching Grief: Frequently Asked Questions about Child and Adolescent Grief
Sadak, K., Connor, C., DeLuca, H., Innovative Educational Approaches to Engage and Empower the Adolescent and Young Adult Childhood Cancer Survivor, Pediatric Blood & Cancer, (in press).
Shafer, K. & Connor, C. Pediatric Cancer Survivors. Handbook of Oncology Social Work, Oxford University Press, in press.
Zabora, J. (2011). “Screening, Assessment, and a Problem-Solving Intervention for Distress,” in Atilio & Otis-Wilson. Textbook of Palliative Care Social Work. New York: Oxford Press.
Zabora, J. How Can Social Work Affect Health Care Reform? (2011) Health & Social Work. 36 (3): 231-232.
Association of Pediatric Oncology Sopcial Workers, May 2011, Atlanta, GA
American Association of Sex Therapists, Educators and Counselors, June 2012, Austin, TX
Critical Mass, November 2012, Atlanta Georgia
Association of Oncology Social Work Annual Conference, May 2012, Boston, MA
International Conference on Long-term Complications of Treatment of Children and Adolescents for Cancer, June 2012, Williamsburg, VA.
The Society for Social Work Research 17TH Annual Conference, January 16-20, 2013, San Diego, CA
The American Psychosocial Oncology Society 10th Annual Conference, February 14-16, 2013, Huntington Beach, CA
Oncology Nursing Society 38TH Annual Congress, April 25-28, 2013, Washington, DC
The Association of Oncology Social Work 29TH Annual Conference, June 5-7, 2013, San Diego, CA
Life With Cancer - Grant Applications
Inova Seed Research Program
Ovarian Cancer Research Fund