Research at Life With Cancer

The Research Committee at Life with Cancer works to evaluate the needs of patients and families at all points along the cancer experience continuum, to monitor the effectiveness of ongoing programs, and to use data from these efforts to develop innovative interventions to improve the lives of cancer patients, survivors and their caregivers. Research activities often involve healthcare professionals including nurses and social workers, as well as survivors, their families and organizations that support cancer survivorship.


All research conducted at Life with Cancer is in compliance with policies and procedures of the Inova Health System Institutional Review Board (IRB) including adherence to the requirement stating all staff participating in research at Life with Cancer will have human participant protection certification.

To learn more about research at Life with Cancer, please contact:

Paul G. Clark, PhD, LCSW
703-776-8779
paul.clark@inova.org

Email Newsletter icon

Sign-up for Email News:

Email:


Projects Completed


Projects Underway

:: Back to top ::


Funded Research

:: Back to top ::


Publications

         :: Back to top ::


Manuscripts in Progress

:: Back to top ::

2011 - 2013 Accomplishments


National & Regional Awards

Sage Bolte, PhD, MSW
2013 Hematology-Oncology Social Worker of the Year Award
The Leukemia & Lymphoma Society
Presented at the Annual Conference of the Association of Oncology Social Work, June 2013

Eric Cohen, RN, OCN
2013 Oncology Nurse of the Year
The Leukemia & Lymphoma Society, National Capital Region

Sabine Gnesdiloff, LCSW, OSW-C
2013 Outstanding Health Care Practice Award, March 2013
Association of Health Care Social Workers, Capital Metro Region

James Zabora, ScD, MSW
2013 Quality of Life Award
American Cancer Society
Presented at the Annual Conference of the Association of Oncology Social Work, June 2013

Constance Connor, LCSW
2011 Social Worker of the Year Award
Presented at the Annual Conference of the Association of Pediatric Oncology Social Workers, May 2011


                                    :: Back to top ::


Representative List of Publications
(Life with Cancer staff names are in bold print)


Bevans, M., Wehrlen, L., Castro, K., Prince, P., Shelburne, N., Soeken, K., Zabora, J, Wallen, G. (2013). A problem solving education intervention in caregivers and patients during allogeneic hematopoietic stem cell transplantation. Journal of Health Psychology. In press.

Bevans, M, Wehrlen, L., Prachenko, O., Soeken, K., Zabora, J., Wallen, G. (2011). Distress Screening in Allogeneic Hematopoietic Stem Cell (HSCT) Caregivers and Patients.  Psycho-Oncology.  20(6):615-22.

Clark, P.G., Brethwaite, D., & Gnesdiloff Hughes-Caley, S. (2011). Providing support at time of death from cancer: Results of a 5-year post bereavement group study. Journal of Social Work in End-of-Life & Palliative Care, 7:1-21. doi: 10.10801/15524256.2011.593156.

Clark, P.G., Rochon, E., Brethwaite, D., & Edmiston, K. (2011). Screening for psychological and physical distress in a cancer inpatient treatment setting: A pilot study. Psycho-Oncology, 20. doi: 10.1002/pon.1908.

Bolte, S., The needs of young adults. Handbook of Oncology Social Work, Oxford University Press, in press.

Bolte, S. & Anrig, C. Sexuality and Cancer. Handbook of Oncology Social Work, Oxford University Press, in press.

Clark, P. & Bolte, S., Integrating adult lifespan issues. Handbook of Oncology Social Work, Oxford University Press, in press.

Clark, P., Bolte, S., Buzaglo J., Golant, M., Daratsos, L., Loscalzo, M. (2012). From Distress Guidelines to Developing Models of Psychosocial Care: Current Best Practices. Journal of Psychosocial Oncology, 30:6, 694-714.

Clark, P. G., Cortese-Jimenez, G., & Cohen, E. (2012). Using reiki, yoga, meditation, or education groups in the management of chemotherapy-induced peripheral neuropathy: Results of a four-Arm pilot study. Journal of Evidence-Based Complementary& Alternative Medicine, 17(3), 161-171.

McCaw, Jean, MA, ATR-BC. (2013). Touching Grief: Frequently Asked Questions about Child and Adolescent Grief
Chantilly, Virginia: Walker's Cove Publishers.

Sadak, K., Connor, C., DeLuca, H., Innovative Educational Approaches to Engage and Empower the Adolescent and Young Adult Childhood Cancer Survivor, Pediatric Blood & Cancer, (in press).

Shafer, K. & Connor, C. Pediatric Cancer Survivors. Handbook of Oncology Social Work, Oxford University Press, in press.

Zabora, J. (2011). “Screening, Assessment, and a Problem-Solving Intervention for Distress,” in Atilio & Otis-Wilson. Textbook of Palliative Care Social Work. New York: Oxford Press.

Zabora, J. How Can Social Work Affect Health Care Reform? (2011) Health & Social Work. 36 (3): 231-232.

                   :: Back to top ::


National Presentations

Association of Pediatric Oncology Sopcial Workers, May 2011, Atlanta, GA

  • Outcomes of an Innovative Educational Conference Series for Adolescent and Young Adult Survivors of Childhood Cancer
    Connor, C.

American Association of Sex Therapists, Educators and Counselors, June 2012, Austin, TX

  • The Sexual Self of Cancer Survivors.
    Bayer, C., Cotton, A., Bolte, S.

Critical Mass, November 2012, Atlanta Georgia

  • The Sexual Self of Young Adult Cancer Survivors.
    Bayer, C., Cotton, A., Bolte, S.

Association of Oncology Social Work Annual Conference, May 2012, Boston, MA

  • Effects of Reiki, Yoga, or Meditation on the Physical and Psychological Symptoms of Chemotherapy-Induced Peripheral Neuropathy: A Randomized Pilot Study.
    Clark, P.G., PhD, Cortese-Jimenez, G., & Cohen, E.

International Conference on Long-term Complications of Treatment of Children and Adolescents for Cancer, June 2012, Williamsburg, VA.

  • Longitudinal Program Evaluation of an Educational Intervention for Adolescent and Young Adult Survivors of Childhood Cancer.
    Sadak, K., Connor, C., DeLuca, H., Shafer, K., Bolte, S.

The Society for Social Work Research 17TH Annual Conference, January 16-20, 2013, San Diego, CA

  • Community Based Participatory Research with Underserved Latina Women with Breast Cancer: Lessons Learned
    James Zabora, ScD (Inova Life with Cancer) & Karlynn BrintzenhofeSzoc, PhD (The Catholic University of America)
  • The Context for Distress Screening in Cancer Care
    James R. Zabora, ScD

The American Psychosocial Oncology Society 10th Annual Conference, February 14-16, 2013, Huntington Beach, CA

  • The Sexual Self of Young Adult Cancer Survivors as Compared to Their Healthy Peers
    Sage Bolte, PhD
  • A Comprehensive and Innovative Model of Psychosocial Care with Distress Screening, Evidence-Based Interventions, and Outcomes Assessment
    James R. Zabora, ScD, Sabine Gnesdiloff, MSW, Eric Cohen, RN, OCN®

Oncology Nursing Society 38TH Annual Congress, April 25-28, 2013, Washington, DC

  • Shining a Light on Community Awareness
    Carrie Friedman RN, BS & Miranda Gingerich RN, BSN, OCN®
  •  Development of a Preparatory End of Life Educational Series for Cancer Survivors-Planning Ahead: The Final Checklist
     Marsha J Komandt, RN, BSN, OCN®

The Association of Oncology Social Work 29TH Annual Conference, June 5-7, 2013, San Diego, CA

  • ACS Quality of Life Award Lecture: What Does Excellence in Oncology Social Work Look Like and How Can We Achieve It?
    James R. Zabora, MSW, ScD
  • Leadership Plenary Institute: Mentorship: Can We Talk?
    Jennifer Bires, MSW, LICSW;
    Sage Bolte, PhD, MSW, LCSW, OSW-C; Alexandra Gubin, MSW, LGSW
  • Developing a Response to the New Standards of Psychosocial Cancer Care: A Model That Addresses All of the Critical Components
    James R. Zabora, ScD, MSW;
    Sage Bolte, PhD, MSW,   LCSW, OSW-C; Eric Cohen, RN, OCN®
  • Increasing Knowledge, Comfort, Approach and Attitude of the Sexual Self of Cancer Survivors: A Response to Identified Needs
    Sage Bolte, PhD, MSW, LCSW, OSW-C
  • Tools For Couples: A Four Week Series
    Drucilla Brethwaite, MSW, LCSW, OSW-C; Paul G. Clark, PhD, LCSW;
    Micheline Toussaint, MSW, LCSW, RYT
  • Caring for Ourselves: Strategies for Building Professional Resilience
    Sabine Gnesdiloff, MSW, LCSW, OSW-C;
    Drucilla Brethwaite, MSW, LCSW, OSW-C
  • Creating and Living your Legacy
    Drucilla Brethwaite, MSW, LCSW, OSW-C;
    Jennifer Eckert, MSW, LCSW, RPT
  • Development of Post-Treatment Program: Women in Transition- The Next Step
    Saundra L. Weller, MSW, LCSW, OSW-C,
    Sage Bolte, PhD, MSW, LCSW, OSW-C

                                    :: Back to top ::


Life With Cancer - Grant Applications


R21- Does time of survivorship care planning reduce distress of cancer patients?
The National Cancer Institute
Submitted: February 14, 2013
Review Date: June 12, 2013
Direct Costs- $275,000 / Indirect Costs- $140,000

Inova Seed Research Program
NEED SLEEP? A 4-Week Program to Reduce Insomnia
Submitted: May 1, 2013
Notification Date: August 1, 2013
Direct Costs- $15,000

Ovarian Cancer Research Fund
Woman to Woman Program
Submitted: May 1, 2013
Notification Date: August 1, 2013
Direct Costs: $50,000

                                    :: Back to top ::